A little fighter who gave everything he had.
Noah Harrison Wilson was born on 26 August 2025. From his first breath he struggled to breathe on his own and was transferred to Addenbrookes NICU. After many tests, scans and an MRI, doctors found he had a rare muscular and respiratory disease called Titinopathy — he could not manage to breathe or feed on his own and relied on machines for every moment.
Noah gave everything he had, but could not overcome his fight. He sadly lost his battle on 1 October 2025.
Throughout her pregnancy, Noah's mother told the hospital and doctors that something was wrong — that she was worried about Noah's lack of movement in the womb. She was told repeatedly that everything was fine, and was sent home. We started this foundation because Titinopathy can be detected early — and families deserve to be heard.
“Together we can make a difference. #StrengthUnited”
